Ashley | 21 | Mother | Systemic Lupus | Chronic illness talk
to many negative beings out there. The comment about me just shooting myself with a gun being the cure to all my problems was the end of it all. I’m tired of such rude people!
“take your medication and shut up! lupus isn’t bad”
“wahh I want a pitty party”
“shut up and stop the whining, go complain on facebook”
or to the ones who feel the need to bluntly put it out there that their disease is 100 times worse than mine and why. having a chronic illness or even just a life problem is no contest. these things aren’t meant to be shoved into others faces like MINE IS WORSE! how ignorant. share your stories, compare. help each other cope. sometimes you will come across a person who is venting about what they’re dealing with and maybe in some ways you feel like they have nothing to really complain about but keep it to yourself. being rude isn’t going to do a thing.
-so i’ve been thinking about getting a camera and starting this blog back up. it use to help me so much when I needed somewhere to go to talk to others who knew what I was dealing with or vent about how frustrating being sick all the time can be.
as far as my health has been, I was in the hospital once again, and got nowhere. my rhuematologist doesn’t see patients in the one I was admitted in to and the doctor I was given, who was a general I’m guessing wouldn’t allow me any pain medication for the flank pain I was having from my kidneys. he deemed me “typical drug seeker” and but me on motrin. Since then the pain has calmed but for a good 3 weeks it was a fight. I’m still on the transplant list though so hopefully something comes up soon!
I just received some lupus bracelets in the mail from the walk for lupus woman who organized last years walk in tampa!
it has the lupus foundation logo, and says “band together for lupus” it’s purple and rubber. exactly like the live strong bracelets! if any of you want one just ask :) i’ll be glad to send a few. I currently have only 10.
-Welcome to A Lupus Flare Up.
In the second one i’m hunched over so I look funny but yeah.
I was at the ER last night for 6 hours because I was in so much pain and my skin was just getting worse and worse, and is still getting worse. I’m praying it doesn’t spread to my face because it takes a long time to get rid of. I can’t deal with another year of having a rash on my face. Or if it does into my scalp and I lose my hair agaain. It’s been 5 years and i’ve been so strong. It’s not easy. This past year has been amazing, I haven’t had any internal or external flare ups. They put me on this amazing new medicine and i’ve been doing so well. I guess I was just over due. For almost 3 years before this year I was so sick, and I would be bedridden with hardly any hair. I would be in so much pain. I’ve always kept a smile on my face, i’m just getting over recent anxiety attacks and tension headaches where they put me on prestiq after trying lexapro. I don’t know if i’m in a state that’s ready to go through that pain and deal with this sickness again.
Oh and I have two kinds of Lupus.
(via randlelayne-deactivated20111120)
-It’s called anxiety! Four more days till my 2nd Cytoxan infusion. I know they are increasing it and I started at 900 MG of cyclophosphamide before. I am hoping that this one won’t be too hard on me and that I get to keep my hair a little longer. I did my Lupron shot and I wonder if I have to do it…
(Source: youwillnoteverbreakme)
--New Member Says:
“I’m scared and new to this. I want to learn”
thereluctantrawfoodist asked: Hi Ashley. Sending you a big hug. x
hugs back! thank you :)
-Everyone bare with me as I am “re-constructing” my blog. My laptop has passed away, which also explains further for my lack of blogging and posting video blogs for you all. Working from a regular desk top I find it was less convenient and a lot more complicating!
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****GRAPHIC*** I apologize.
